Iris Gray was diagnosed with Asperger’s syndrome around her 35th birthday. Anna James/VICTORIA NEWS

Fight for autism diagnosis arduous for adults in B.C.

Public funding scarcely available for people over 19 with the disorder

Diagnosing adult autism costs between $2,000 and $4,000 and is not covered by B.C.’s Medical Services Plan. From age six, people with autism experience a sharp decline in government support until age 19, when most funding dries up.

Iris Gray was diagnosed with Asperger syndrome around her 35th birthday. She was relieved.

She suspected she sat somewhere on the autism spectrum but was told, for many reasons, that it just wasn’t possible. Gray was too intelligent. She was a girl. And by 19, she was too old.

“Help diminishes after age six, and even more after school is over. Some universities, like our own University of Victoria, have services for autistic people, but for those who aren’t able to go to university, help just ends,” she said.

“Children show the most benefit from autism treatment and the funding and policy aligns with this,” confirmed Andrew Pinfold, director of operations for Autism BC.

Under the current system, children under six can receive $22,000 a year toward therapy. Government funding for those over six is capped at $6,000.

Funding after age 6 is diverted to the school district who receives $18,850 for every student with autism, stated the B.C. Ministry of Health website.

A representative from the B.C. government advised that funding for adults is available through Ministry of Social Development and Poverty Reduction.

The current system is not of much help to Gray, who has independently built networks in the absence of government support.

“The best thing I ever did for my autism was actually done before I knew I was autistic,” she said. “I went to the Bridges for Women Society back in the early 1990s, where I learned life skills and communication skills. I belong to a few autism peer-support groups on Facebook and I now organize an in-person, peer-support group of my own in Victoria.”

She currently works full-time as a transcriber, using her fastidious nature – commonly associated with Asperger’s – to her advantage.

Meanwhile, Pinfold remains hopeful about the future for adults with autism.

“We are certainly talking to government about considering extending therapy to align with other programs, but it’s early days,” he said. “As children age out of care, they can access Community Living BC, job training, community.”

That is, if they were already diagnosed as a child, he added. “The reality is, once you turn 19, there’s no money for therapy. Then you’re kind of on your own for treatment.”

For those without funding, Gray suggests sourcing a specialist that charges less.

“There’s also the possibility of accepting a self-diagnosis as valid,” she said.

anna.james@vicnews.com

Just Posted

Impaired driver crashes into Victoria police vehicle, injures officer

Cook Street collision occured in the early morning hours of Tuesday

Get ready for the 39th annual Goodlife Fitness Victoria Marathon

Up to 9,000 particpants are anticipated for this year’s three-day race weekend

Victoria police say explicit calls continue to target women

Over 50 reports of unwanted, sexually explicit calls have come in

Plaque that replaced Macdonald statue at Victoria city hall vandalized

Less than 24 hours after plaque was installed, an ‘X’ had been scratched through the centre

Weekend collisions keep West Shore RCMP busy

Officers responded to three separate incidents within the span of one hour

Average Canadian family spends 43% of income on taxes: study

Fraser Institute’s consumer report shows taxes accounting for larger chunk of income each year

RCMP to search for body after man drowns in B.C.’s Buntzen Lake

Officers and fire crews responded but the man from the Lower Mainland is believed to have drowned.

Police chiefs call for stricter controls on pill presses to fight opioids

Canada’s police chiefs are urging Ottawa to beef up its fight against the opioid scourge by closely vetting people who import pill presses

Greater Victoria Crime Stoppers wanted list for the week of Aug. 14

Greater Victoria Crime Stoppers is seeking the public’s help in locating the… Continue reading

‘It’s like a party in your mouth’

B.C. creator’s Milkshake Burger makes its debut at the PNE

Vehicle catches fire near Vancouver Island provincial park

Fire shut down Highway 4 in both directions

Get involved in the Great Canadian Bumble Bee Count

Environmental organization develops app to help with the nationwide count

Most Read