Sooke steps up to help sick boy

Upcoming events include a candy sale, a benefit concert, a family carnival and a dance

The Sooke community is going above and beyond to support Landen Alexa, a local child struggling with a rare form of arthritis.

“I kind of had to take a step back with fundraising because of how busy I’ve been with school and Landen,” said Jillian Lanthier, Landen’s mother. “So to see the community come together to help us like this, I am speechless. I love Sooke as a community, and I have no plans of ever leaving.”

Love for Landen Day is planned for Feb. 10 in Sooke and candy bags will be sold outside Shoppers Drug Mart, Village Foods and at several other Sooke businesses for $2 each to raise money for Landen.

Another event coming up is a Boz Roz–Remember John Lennon benefit concert on Feb. 16 starting at 8 p.m. at the Holy Trinity Anglican Church in Sooke. Tickets cost $20 and will be available at the door the night of the show; all proceeds will go to Landen.

RELATED: Six-year-old Sooke boy needs $19,000 a month to treat rare form of arthritis

Last June, Landen was diagnosed with systemic juvenile idiopathic arthritis , or SJIA, a disease that causes his body to attack itself, leaving him with crippling muscle and joint pain and with virtually no immune system.

Landen’s medicine is no longer working effectively, and the only option for treatment Ilarus, a drug that costs $19,000 a month, and is not covered by B.C. Pharmacare.

Lanthier, said since being denied help with payments from the government, she is first aiming to try and raise $57,000, enough for three months of treatment.

So far, through a Go Fund Me page, Lanthier has raised more than $15,000.

One of the biggest upcoming fundraisers planned is a family carnival and concert on March 3 at the Sooke Community Hall. The carnival, which will include a D.J., games, bouncy castles, a magician and a photo booth, runs from 10 a.m. to 5 p.m. Admission is by donation.

The adult concert and dance, featuring the band SuperSauce, will begin at 8:30. Tickets can be bought in advance at Stick in the Mud Coffeehouse or at Shoppers Drug Mart for $10, or for $15 at the door.

Marg Ayres, organizer of the event, said she was amazed and very thankful for how much Sooke has already contributed towards the event.

“We are looking forward to coming out and meeting people at the events, and thanking people for what they’ve done for us,” said Lanthier.

Axe and Barrel and Mr. Mikes in Langford are both planning on hosting “beer and burger” nights to raise money, and there is also an ongoing bottle drive happening for Landen. Bottles can be donated at the Sooke Bottle Depot.

“They say it takes a village to raise a child, and I seriously have that right now. That village for me is Sooke, and I don’t know how to express how grateful I am,” Lanthier said.

To donate to the event on March 3, contact Marg Ayres at marg@timayres.ca.

Just Posted

Timelapse shows Blue Morpho chrysalis morphing at Butterfly Gardens

One of many speices of butterlflies at the Buterfly Garden

Greater Victoria workforce gets older but also more diverse

By 2036, Greater Victoria will have roughly two workers for every person 65 years and older

Free blood type tattoo with donation draws crowds in Finland

One in two people is eligible and able to donate blood, but only one in 60 people actually do

Greater Victoria enjoys sunny first day of spring

Summer-like temperatures of 21 degrees hit Wednesday for first day of spring

Saanich forwards student-targeted development to public hearing

Proposed development advertises itself to individuals who want a car-free lifestyle

VIDEO: Can you believe it? This B.C. hill pulls cars backwards up a slope

Sir Isaac Newton had clearly never been to this Vernon anomaly when he discovered gravity

Greater Victoria Wanted List for the week of March 19

Greater Victoria Crime Stoppers is seeking the public’s help in locating the… Continue reading

POLL: When do you think the next major earthquake will hit Vancouver Island?

According to seismologists, Vancouver Island is overdue for a magnitude 7 earthquake.… Continue reading

Canucks hang on for 7-4 win over Senators

Horvat nets 2 for Vancouver

European, Canadian regulators to do own review of Boeing jet

Air Canada plans to remove the Boeing 737 Max from its schedule at least through July 1

Prime minister defends Liberal budget measures as sales effort gets underway

Conservatives under Andrew Scheer say it’s a spree funded by borrowing against the future

Mayor meets with B.C. health minister on homeless taxi transfers

Two homeless people were discharged from Surrey Memorial and sent to a Chilliwack shelter

B.C. lottery winner being sued by co-workers

They claim he owes them $200,000 each, in a lawsuit filed in B.C. Supreme Court in Vancouver

Teacher reprimanded for conduct towards special needs student

Alan Stephen Berry told vice principal he did not have time to use positive strategies

Most Read